Day Twenty Two

Hi fellow people,

Last night’s sleep was a little messed up, mainly because the NG tubes feeds were a bit over the top. At 2.30am after two boluses – one for lunch (80) and one for dinner (120) then night feeds of 55 mls per hour, Immie poor lil tummy exploded and she projectile vomited across the bed – nice!!. The fab night staff were very quick to clean up her bed and Immie got back to sleep ASAP. Immie woke at 5.30am complaining about how loud the pumps were (what the?), we only had one pump going which would a first in 10 days. She then went back to sleep but soon awoke to pee, and remain awake after 6.

We did a little cutting and a bit of watching tele, though Immie soon tired of all of that. She rested until Carla (the toy lady lol) arrived to play; they did a lovely box for Aunty Livi and some more colouring in. I made a skeleton with arms and legs that could be moved (how clever I am) for Halloween. We then got Immie up to look (and scowl) at the musical mat, then Carla and me took Immie for a walk to see Nurse Shell and Nurse International Dora (aka Shirley) wearing their hats that were in the shape of a lion and a tiger. After a few giggles we returned to the room, with us pretty much dragging Immie part of the way (naughty mummy and Carla).

Just after that Aunty Livi arrived to a grumpy response, and there was no way any of the docs or oncologist were getting a happy greeting (lol). I felt bad for Nurse Sarah, as we have had her for quite a few days since being here, and she has been so lovely with Immie trying to chat to her, but Immie won’t have a bar of it. She even told her the other day she did not like her (Sarah’s) head band, and Sarah removed it!!.

Immie was in a really funny mood today, when told she would be going home possible tomorrow (yeap you read it right), Imogen told us she did not want to go. I can’t imagine, how she feels and what she thinks in that little head, after coming in here feeling 100%, she is going back into the world with her self esteem and spirit a little broken (oh it makes me sad to what we have to do and what they have to go through to beat this bloody beast).

After lunch mum came in and Immie rested for a while, then proceeded to have another huge chuck....BLAH!!!, usually she feels a little better though this time after she was more grumpy. Livi was meant to stay here with her tonight as I was going to my English class, no way was Immie going to let me leave, so no English class tonight. I sit here watching my beauty sleep, and hope it brings her peace and more restfulness.

Love Fiona

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P.S. Got to see our two pals today, Beautiful Nicole and Cath, who came in for a check up after ending up with pneumonia in Bali, argh, they went to the private hospital over there, and were treated fabulous. They had a wonderful time there, with the best service. It was such a well deserved break for them all. The one thing we have been blessed with while going through this journey is the friends of other families with kids with cancer we have met and formed incredible bonds, that is one thing we will be eternally grateful for.

P.P.S OMG I CAN”T WAIT TO GO HOME!!!!!!!, this will be our last stay ever in the PMH Resort, its killing me to stay another night, hate to whinge though as others in here have been here much, much longer, Hugs and Kisses to Mikie and Ollie

Counts –
Red cells – 82
Platelets – 46
Neurophilis – 4.37