Good Evening all,
I think last night we had the best sleep we have had since last week, yes a few wees, a pump malfunction, a line that leaked blood onto the bed and just prior to ward round (of I like to call it the gold fish bowl as there is about 20 people looking at Immie through her door) Immie chucked the tube up. Though still a good night, actually got some sleep!!!!, not sure how much but some??, also no temps and no throwing up (woohoo)
Immie awoke the morning with an incredible gumpy bear attitude, telling everyone off, and would not even let Nurse Shell do her blood pressure. Argued with me that she definitely did not want a shower, but guess what she got one anyway. Then shortly after the shower, we got back to the big and chucked the tube up (as meintioned previously) after that Immie was a different kid, laughing at The Night Garden and Playschool.
At about 10.30 after checking counts the tube was reinserted, with much tears, I honestly believe for her the tube is a mental thing, she associates it with her not being well and being controlled. After the tube is reinserted the drool starts again, and the miserable little girl returns. Though after having the tube inserted today, Immie actually perked up a little and played with Aunty Livi and Mum. This was just wonderful to see, though after a short while she was exhausted again and fell in a heap. We have been told that it will take Immie quite a while to regain her stamina and endurance.
In the middle of the afternoon the fantastic clown doctors arrived Dr Wally is Immies favourite clown doc and he was joined by Dr What, they do a fabulous job at making the kids smile and laugh. Immie was very happy to see them both. After that she rested, the poor sod was a bit unsettled as she has to have 20ml of phosphate (one of the many things that the mega therapy knocked out of her system) twice a day (I think) down her tube, and it’s a bubbling mix, so you can imagine how it messes with ulcers in your tummy. Late in the evening, Kody and Daddy arrived for a visit with the beautiful girl.
Immies counts today were
Counts –
Red cells – 86
Platelets – 50
Neutrophilis – an Incredible 0.53 (go go stem cells)
Counts –
Red cells – 86
Platelets – 50
Neutrophilis – an Incredible 0.53 (go go stem cells)
Good night sweet people xx
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