Day Sixteen

Hi

Immie and Jas had a semi ok night last night, normal chucking, weeing, temps etc, but a allocated three hours of sleep between 2am – 5am. At 5am Immie managed to chuck up the ng tube out the mouth (yuck, yuck, yuck). Apparently after that she really perked up asking Jas to read the book Mum had bought for her the weekend, then there was even some cutting done and then more resting and watching tele.

When Livi and I arrived she looked average, but after a good chuck she settled down and was the most perkiest I have seen her in days. Mum arrived and we were even blessed with a gorgeous Immie smile – WOW!!!. Immie was chuffed today as she received a new bear donated by BIG W Midland that even came with its own birth certificate (a very very cute donation).

Unfortunately the afternoon we had to reinsert the ng tube and the broviac (chemo line) dressing change. Immie received some more platelets and a bolus of morphine prior. She was very good with it all, she still kicked (only a little), cried and screamed, but it was the best I have ever since her do a dressing change. The afternoon she has not been to happy, though still comfortable, just so much mucus rolling around her throat, which makes her and us gag (yucky). She finally had a sleep the afternoon after being up since 5am at about 4pm the afternoon.

Began the TPN (Iv feeds) yesterday, though she will still continue getting Ng tube feeds as well. Immie is still on a ton of other medicines, very, very confusing, and has seven pumps now running, normally at the same time.

The best news we received today was her counts, her neurophilis (immune system) have shown some improvement, they have jumped to a major 0.10, this is really great as just yesterday they were 0.02 – woo hoo.

Of course this is just the beginning, of the journey, we just have to still keep her somewhat in a bubble, as we don’t need any extra pressure on her immune system. An infection right now would mean we would take 5 steps back.

I have been so rapt by all of your support and the fact that so many are reading the story of our little girl, thanks for the posts on the guest book and email, it helps more then you know.

I honestly hope she has taught you to cherish each day, and the incredible strength and lessons our children can teach us if we open our eyes, stop to enjoy smell the flowers and look forward to every single moment with them,

Love Fee

Counts –
Red cells – 91
Platelets – 21 (transfusion given)
Neutrophilis – 0.10

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Love this quote sums up about how I feel for my beautiful kids -

Before you were conceived I wanted you

Before you were born I loved you

Before you were here for an hour I would die for you

This is the miracle of life

Maureen Hawkins