HiLast night’s sleep was great, Imogen awoke at 1.30am and then again at 5 am for a pee, then I slept next to her, while she patted my hair, gave me kisses and told me she loved me. No temps, no chuck ups and the feeds were put up to 42 mls an hour (a huge record).
Immie woke again the morning at 7am, a little rough then went back to sleep till about 8.30am. Then she woke up, chucked up and watched ABC kids and her favourite playschool. Carla the play therapist arrived and they began to painted bats for Halloween and a few pumpkins, Immie really enjoyed this. Just after 10am, the docs and Dr Maryanne arrived to check her out, to Imogen’s disgust (she pretty much ignored them), and she continued to colour.
Immie woke again the morning at 7am, a little rough then went back to sleep till about 8.30am. Then she woke up, chucked up and watched ABC kids and her favourite playschool. Carla the play therapist arrived and they began to painted bats for Halloween and a few pumpkins, Immie really enjoyed this. Just after 10am, the docs and Dr Maryanne arrived to check her out, to Imogen’s disgust (she pretty much ignored them), and she continued to colour.
After that Josh and his mum Hannah (who were here at PMH resort for treatment) arrived with a gift (always well received by our beautiful girl), of a Finding Nemo bubble blower, the two had alot of fun catching the bubbles, and Josh was very loving with a few cuddles for Immie. In amongst all this we had nurses etc. In and out with line changes and meds to change. Immie began an n.g. feed bolus (90mls over an hour), a huge defeat for someone who was only handling 10mls just a few days prior.
Just before lunch Aunty Livi arrived, with more petrol for Mummy (real coffee yummy) and then sat with Immie while I went in search of a green lollipop, two bags of starburst lollipops later and no green lollipop (even though there is one shown on the front and back of the pack – argh!!). The first food (kind of) thing Im has shown any interest in for the last fortnight. After lunch Immie went to sleep and also received another platelet transfusion, FUN!!!, which when awaking up was check for temp and had a temperature of 38.2 OMG!!!!. I think I may have jinxed it by chatting to Cherrie and saying we could come to Kai’s party on Friday. Then the temp was taken a little while later and to have found to go down YIPPEEE!!!, so it was suggested that it could have been a reaction to the platelets.
Immie has been very quite the afternoon; I think she is still exhausted from the morning’s big play. She also chucked the afternoon as I had to do mouth care (6 times daily) with her which involves getting a large cotton swab dipping it in foul mouthwash and then swabbing the back and sides of her tongue, and then covering it all with dental gel on a smaller swab which she managed to get the end off and started gagging on....BLAH!!!. Hopefully over the next few days the morphine will be gone, the antibiotics have now been turned off as she never grew anything nasty from her blood cultures and the TPN feeds (iv feeds) are finished with the ng tube feeds replacing them. We just need to wait and see how the girl goes over the next 24 hours with no antibiotic protection...and cross everything no temps arise!!!.
Love Fiona
P.S the incredible neurophilis have jumped again to a crazy 3.97...not sure what yesterday was about!!!!
Counts –
Red cells – 84
Platelets – 11 (transfusion)
Neurophilis – 3.97
Red cells – 84
Platelets – 11 (transfusion)
Neurophilis – 3.97
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