Sunday, August 31, 2008

Hailey comes to visit - 28th of August


Hi

Immies beautiful friend Hailey, her mum Karen and her lil boy Dylan came to visit us today. Immie had a lovely time running around with Hailey and looking and smiling at baby Dylan. While Karen and me got to have a good chat, it is so lovely to have time with Immie being normal, seeing her friends & running around, away from the hospital and all its nasties.

Click on the slideshow link on the page -


Love, Hugs and Kisses
The Holmes Gang

Jody's Hens Afternoon Tea

Hi everyone
This week my brother, Nigel and Jody got married. As everyone who has gotten married can imagine this week has been stressful though surrounded by joy and happiness. We began the celebrations with the boys buck night a few weekends ago, which involved a very social and giving (spew) Nigel, the boys had a good night. This week we had a much quieter Hen's afternoon tea at Leaf - Mt Lawley with Jody, we all enjoyed the lovely tea and special nibbles.
Find attached a link for the hen's party pics, once agin I am trying another different program to help me manage the massive time it takes to upload pics to the blog,
Let me know which you think is easier to navigate
Photobucket
or
Picassa share albums
Love the Holmes Gang

Thursday, August 28, 2008

Last Chemo

Hi all

Yeap I have been a little delayed in blogging. I have now only just found out the blog I did mid week went to drafts not publishing during last week - Frustrating!!!
I am trying a new idea, as up loading the pics take incredible amounts of time -
Click on the link above or cut and paste it in your browser
xx Fiona

Sunday, August 17, 2008

17th of August 2008 - Ballajura Fair

Immie on the pony
on the ferris wheel
Kody's ear, Immie shouting at the red nose man " We have you on our car!!"

Immie as a lion (just about every time Immie gets her face painted she chooses a lion??)

Granma and a cheesy Immie


Pile ons - some people just can't be taken anywhere - Dad, Kody and Imogen


Imogen's flower girl try on...she looks too cute

Hi all

Today I felt like crying, it was not the day, as the weather here was beautiful, the fair we went to was fun and Imogen looked very cute in her flower girl dress. Just sometimes the anticipation of what is to come for Imogen (treatment wise) and what she has been through just feels overwhelming. You can be standing there watching her ride the pony at the fair, laughing and giggling, and instead of feeling an overjoy of how she is feeling today, you are hit with a sad thought as you think about tomorrow (Broviac operation) or what she has had to do and believes now is her life, as she no longer remembers before cancer. It is heart breaking to be a parent and have to make decisions on treatment, that you know will make your beautiful, smiling, full of life girl feel horrible & really sick to make her get better and be cancer and hospital free. It is days like these you are also hit with the fact that your life regardless of the success of treatment will never ever be the same, your normal has changed, while everyone around you remains the same. Just sometimes this battle is unbearable. Then when we are struggling, you are touched by incredible moments of happiness and human kindness. You manage to get back on the roller coaster of life, and count another beautiful day you were able to spend surrounded by the people you love.

Yesterday my beautiful friend Sam, came to see us with her big little boy Dhani (Imogen's friend since she was born). Sam had told last week that she had approached the store manger of the department store she worked for, to inquire about whether they could do some fundraising for us. The amazing store manager said yes definitely, then the other day he saw Sam again and asked what Imogen would like. Sam explained how we spend a lot of time entertaining Immie in isolation while doing chemo or waiting for scans or in patient temperatures. The store manger then rushed off, later Sam was called down to the sound and vision area. There waiting for Imogen a DS Lite (game console) and three games. What an incredible act of human kindness!
Today we were also blessed with human kindness one of Jason's clients grand daughter, over heard her Granpa talking about Immie and went out and bought Immie an assortment of things to help bring a smile to our beautiful girl.
It is from these moments we gain the strength to rally on, to find the steady ground and continue to climb this shaky mountain.

Tomorrow Immie will check in to hospital at 7am and have her broviac installed at 10.15am. A broviac (chemo line) will mean the end of all showers and pools for Immie for at least the next four months. It will also mean to our girl countless (weekly) dressing changes which Immie hates the most of anything. We will have to stay over night and then super girl will begin her last cycle of chemo (number 6). In two weeks she will have more scans, to reveal whether the surgeon thinks its safe to operate or not. The timing of the mega therapy and stem cell rescue will depend upon this. It will most likely be middle of September. 6 weeks after stem cell Imogen will have radiation and then have to take a drug to prevent the tumor cells (if any - there won't be) from clumping again.

Please wish us strength and smoothly sailing tomorrow and onwards xx

Love and Hugs

The Holmes Gang


P.S. We know we don't mention it enough but did we let you know that we also have the most incredibly amazing son, Kody, I am not sure you could find a better big brother for Imogen. He is a constancy in her life when everything seems rocky. Super sibling Love.
P.P.S Just to be defiant Imogen has decided to start growing her hair back, no one is telling her that chemo will stop hair growth and also now she is swallowing the tablets whole and she does it without a drink...WHAT!!!

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Monday, August 11, 2008

August 10th & 11th - Day three & four of the Imogen Olympics

Just hanging around
Immies happy snaps...ooo...I almost got both of us!!
Kody dressed up as Humpty Dumpty...oh anything to entertain his sister
My fabulous Dad
Mum, Kods and Immie
Immie and Dad, keeping busy
The new hat from the free table


Squashing Kods

Kods and Immie



Paper mache...yes what next!!!



Love this pic as Immie is getting Lilly the play therapy puppet to hug her!!

Hi all

Yeap
we are home....!!!!....HURRAY!!!. Yesterday was incredibly long , the op to remove Immies port, which was scheduled for 9. 30am, end up being moved to 5pm. Lots of emergencies, Lots of delays and one hungry girl. Who had only eaten a bowl of rice bubbles and 2 glasses of apple juice in 29 hours, thank god for IV drips.

The last couple of hours consisted of Immie saying "I really really would like that meat pie now" and "when is that man with the white medicine going to turn up". Though all that waiting Immie was incredible, easy to entertain, she breezed through it all. Finally Imogen's turn arrived at 5pm, and we were out of the door, stopping briefly to get the nurse, just in case something pushed us back again.

In Immie went and had the port removed in a hour and bit, and came back the way she had left happy, smile and eager to EAT!!!. Unfortunately she had come back from surgery without the new drip requested and the one she went with was then stuffed. Then Immie got a new cannula (drip) put in with again no emalea (numbing cream), we have decided this is less traumatic for Immie as she doesn't spend the hour looking at the cream getting herself worked up for what is to come. This drip was fantastic till 1.30am when it to packed it in and started leaking all over the bed, so another removal, which Imogen never remembered the morning..poor pin cushion.

Awoke the morning with the chance they were going to have to put another IV drip in if she need more blood, platelets (she had a bag of both over the weekend - thanks Blood Bank) or the IV antibiotics. Thankfully the lovely Dr Tina Carter decided no she had been through enough trauma, and sent us home on tablet antibiotics which Immie swallowed down like a trooper.
SOOOOOO Glad to be home...yay!!!

We were very lucky to have Kody, Mum and Dad to help us entertain the lovely Imogen, thanks people!!, and of course the staff at PMH (3b), who were constantly fighting our battle about being delayed.

Love and Hugs
The Holmes Gang


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Sunday, August 10, 2008

Immie Incredible Girl - 10th of August

Immie was soo very excited to see Daddy on Friday night

Immie giving woody big hugs

Immie dancing to the Wiggles


Mum, Immie and Dad


Immie and Dad reading books

Hi all
Surprise, surprise, we checked into the PMH Hotel on Friday, as the port (the catheter where all the chemo gets give through) site did not look any improved from Wednesday. By the sounds of it, the new antibiotics she was put on were fighting a losing battle against this yukky bug she got.

We checked in and go put in isolation as usually, then we moved to the transplant room as they needed more isolation rooms and the only thing wrong with Immie was this port site looking dodgy. The transplant room has a small room before the door that enters the main room very very isolated, but large too, so the very UN sick Immie had heaps of room to run around in (with Iv pole coming a slow second behind) !!. Immie has spent the last coupla days painting, painting, playdoughing, watching tele, painting, and drawing oh yes and giggling!!.

Yesterday from 12pm Immie (and pretty much all of us too) started fasting as she was scheduled to have her port removed via an operation (yes none of the antibiotics worked, so they have decided to removed it) at 6pm. We had a lovely afternoon with Granma, Granpa and Kods came and saw us, so fasting was a breeze. Half way through the afternoon she went to sleep , and then woke with a headache and proceeded to have a good chuck (nice), and this then pushed her slightly rising temp down. So now she had removed all the food she had all morning as well.

The time rolled around to 6pm, we were told "no your now at 7pm", "no we have had emergencies, now 7.30pm", the around came 8 pm, then at 8.25pm, the nurse came in and told us we had been bumped till tomorrow morning first thing. We tried to get Immie to eat, but of course by then she was too tired and fell asleep. This leads to the morning of no eating because we are second on the list at 9.30am, by the time this is over she will be starving (I friggen would!!).
Anyway I had been get back in there, and see my incredible girl and super husband,

Wishing you beautiful days,

Lots of Love
Fiona
The Holmes Gang

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Wednesday, August 06, 2008

Clinic Check up - 6th of August 2008

Immie was sooo excited when she found this beloved Humpty Dumpty on the special present table today, Immies favourite nursery rhyme for the moment is Humpty Dumpty.

Louise and Immie

Immie

Lets see who is watching and listening to me

Louise, Beth, Humpty and Immie

Hi all

Today we was Wednesday which to us means clinic day. We were a little slow getting to the hospital due to the parking and because I was a little tired as last night my beautiful friend Brooke took me to see the gorgeous "Pete Murray" in concert. Before we arrived at the hospital we also took a detour and went to give the lovely ladies at Camp Quality a card we had made to thank them for their mammoth effort in organising all that was needed for our trip to Melbourne.

Then we finally got to the clinic at about 10am, then off to bloods we went to get checked out, all was good in that court. We then asked to see a doctor as Immie, when she finished chemo last Friday was found to have a nasty infection in her port (yeah another one). My poor mum did chemo with Immie last Friday, and really got the rough end of the deal, the longest chemo of the week, port infection and missing needle to bring her immune system up again needed by Home nurses the next day.

Anyway the antibiotics Immie has been on don't seem to be making a lot of difference, we got into see the doctor at about 12.30. This lead for the need to contact the microbiologist who then prescribed another antibiotic (yeah we have all the penicillin that Australia is low on Margaret!!) and cream as yeah, the swab the took on Friday grew some thing funky!!!. So we are hoping like anything that all of the above works as if it does not Immie will have to check into the lovely PMH Hotel on Friday...ARGH!!.

Anyway we got to leave the hospital at 2.15pm.....though on a plus we were entertained by the fantastic Louise (music therapist) and Beth (OT) and boy did we entertain anyone leave or coming to 3b with the drum, as we played it in the hall way outside 3b...hahaha Immie was busy showing every one she is alive, fighting hard and more nosier then ever..We love it!!!.

Lots of Love and Hugs
The Holmes Gang
P.S. I will be blogging my Birthday pics and the Fantastic Melbourne soon...promise xx
P.P.S Was very chuffed tonight as Immie swallowed her antibotic tablet, we had never tried her with tablets, so were very suprised when she just took the bitter tasting tablet..yay!!

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Melbourne Break..at last


Melbourne what a blast, we had incredible flights over with Qantas, window seats, and the kids were fantastic, the air hostess had a job keeping up with Immie the chatterbox....hehahahah. When we landed we were invited to the cockpit to meet the pilots and Immie and Kods got to sit in their chairs with their hats on. By this time it was 11.30 pm, and the kids were still pumped and running around the airport. Then to the bag stop, where we met our driver, Louie, who had been patiently waiting for us after quite a few delays prior to leaving Perth. We were driven to the Regents in a beautiful Holden Statesman, we arrived in our room, at about midnight, with lots of giggles and Immie telling everyone to be quiet after she was doing fake snores, we finally got to sleep at 12.30pm.

The next morning was an early start nothing unusual, with our jumping jellybean around. We stood on the side of the road for a while observing the trams, finally acknowledging that yes they did want us to go stand in the middle of the road to catch one (what the???). On our first trip on the tram, we were surprised by the ticket inspector, after we had spent several stops on the tram wondering where you buy tickets...no not from the tram driving but a box at the back of the tram. After many conversations with the inspector, and showing Jas’s WA drivers license, he finally agreed that we really weren’t trying to get a free ride from the Melbourne transport, though this also meant we had missed our stop, and had to walk around in circles to discover Camp Quality’s offices and the fabulous Queen Victoria markets. We went and said a quick Hello to the great Camp Quality Melbourne and then hit the markets. WOW...incredible wonderful..the food...amazing...I want that market around the corner from me. Then into the city, another fantastic buzz, then the back to the hotel to drop the kids and hubbie of for a rest. Then I returned to the city to shop and back on the tram at peak hour, another culture shock, felt like a real country bumpkin. Then Maccas for dinner, and sleep time.
Day Two was begun with Pancakes in the restaurant, then the Melbourne Zoo. We arrived a little early as the animals were still sleeping, finally we saw the fabulous elephants and beautiful butterflies, and then stopped for a snack break. Then we got a call from the zoo people, who organised for us to feed the giraffes behind the scenes. That was something we will all remember for our whole lives, their big long tongues and love of carrots. After that we saw the rest of zoo - bears, snakes, and incredibly small frogs. After that we went back to the hotel, and walked down to the Queen Victoria markets again (told you we loved it). We went into the city for dinner at the food hall. Home again.
Day three, we awoke to the beautiful Melbourne, the boys were organised to go the Footy at the G, so in the morning we went to the Melbourne Aquarium, amazing fish, lots of fun, and smiles. Then the boys went to the footy and the girls went to the Queen Victoria Markets for American doughnuts then Chadstone shopping centre, via train, were Immie went on the teacup ride inside the shopping centre and mum shopped for a new bag and purse. Back on the train, room service, sweet dreams.
Next morning...you guessed it back to the Queen Victoria Markets, and then into the city, back on the tram, time to pack up for home. Then Louie, our driver (organised by camp quality) was there to pick us back up. We had a fabulous trip home with Qantas and a gorgeous air hostess who doted Immie, and talked nonstop to her about cats. A viewing of the cock pit, involving chocolate and then back to our car and home to a cloudy Perth by 6.30pm.
We can’t thank everyone enough, especially Camp Quality Perth for taking on the organising; they helped make our trip to Melbourne into a dream break.
These are memories that will never be able to forgotten regardless of the years that past or any cloudy day.


Alot of gorgeous photos of our holiday can be found on the below link xx