Hi all
Medically, Immie completed her first round of Accutane, it was very rough at Christmas. We were glad when it finished just before holidays. The side effects we encountered were mood swings (you dared to look at her some days), extremely dry skin, cracked lips and nightmares. These side effects varied from day to day. Then we had two blissful weeks, with only special tablets and drops to boost her immune system. Immie began her next lot on Wednesday, after a few hiccups (ok some major ones...grrr), we had the tablets and headed home. We also got given the “forgotten” Vitamin E, to help her skin which we soon substituted for a tablet form as the liquid tasted horrible.
Immie has a few tests of the next month, unfortunately going into next month when she will begin pre primary. Though they are before uni begins for me, you gotta take the good with the bad.
Hearing test is the first cab of the rank – This Monday. Then mid Feb, the CT scan and another check up to begin the third dose of Accutane, End of Feb, check in contrast injection and then the next day big MIBG. Then somewhere in there they need to fit an echo in (a test on Immies heart) and a GFR (to measure Immies kidney function).
We are feeling positive in regards to all the results, though it’s always bloody scary. I wonder will there ever be a time it’s not, I’d doubt it. We are trekking towards that end, but someday the path feels a LONG way away.
We are feeling positive in regards to all the results, though it’s always bloody scary. I wonder will there ever be a time it’s not, I’d doubt it. We are trekking towards that end, but someday the path feels a LONG way away.
On February 22nd, it will be two years since we began, this emotional, incredible journey, that has taught us so many lessons, though has also given us moments of extreme sorrow and joy. Weird isn’t it, how live changing events can do that??, two total different emotions mingled together.
To nourish children and raise them against odds is in any time, any place, more valuable than to fix bolts in cars or designing nuclear weapons.
Marilyn French
Food for thought
Love Fiona and the gang xx
Josh and Immie
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