Hi all
Once again the week has gone and I have yet to update the wonderful blog. On the Tuesday we went to visit the wonderful Dhani and beautiful Sam, friends since we both gave birth to Immie and Dhani - four years ago. On Wednesday Immie did a sterling job at having her broviac removed, fasted for six hours till 1.15 – no sweat. She spent the morning playing with Josh, crafting and being good till the time arrived. Prior to going to the hospital she did freak and did not want to go anywhere near that place. The thought of having her taps removed made her bellow loudly. I am not sure how she thought they were going to be removed, but she was having no involvement, luckily after a little bribing we were on our way : ). We got home at about 5pm, got ourselves ready and we went to the school Christmas carols (yeap nothing going to stop supa kid!!!).
Thursday meet us with a early start to travel to meet the WIGGLES, arriving early, we went to the park for a while. Then we caught up Cherrie, Kim (who organised for us to meet the wiggles – thanks heaps Kim) and all the crew and off we went to a small room to meet the wiggles. They arrived we got a gorgeous photo with them, and a very quick chat, and then unfortunately they had to go get ready for the show. The Wiggles show was great, Imogen loved every bit, singing and shouting, it bought a tear to the eye to see the girl enjoying life to the fullest. HJ’s for lunch, home to meet my fabulous boy. Kody has been busy doing school swimming lessons and growing (he has grown heaps in the last six months). I can hardly believe he will be in Year Five next year!!!.
On the Saturday morning Kody and Immie had their pictures taken with Santa. Immie sat there will her eyes wide open, while Kody joked around with Santa. We pick the pics up tomorrow will have to scan and blog the pic. Over the weekend we began hanging the lights, they look very special. Will have to blog some pics, we are the only ones in our street: (. On the Sunday morning we opted out of the city Christmas parade and chose a visit to Cuddly Animal Farm, one of Imogen’s favourite places, think that has to do with all the cute baby animals you can hold. In the afternoon Granpa came to visit and then before you know it was Monday, and the week began again : P.
Monday bought playtime with her pal Penny, and plasma donating for me...
HERES WERE I GO TO ALL WHO DON’T DONATE AND COULD DO, PLEASE, PLEASE CONSIDER DONATING BLOOD. Immie would not have made it through stem cell rescue without the donations from the wonderful donors. Honestly it really does not hurt too much and it does not take much time out of your life every three months!!!.
On Tuesday Immie went to Kindy all day, someone forgot to tell Immie she was meant to be fatigued, the girl who never listens to norms (thank god!!). Today we had a quick visit to the hospital to a baseline line finger prick to prepare to begin the next drug on Immies list - Accutane
(What can you tell me about accutane?
Accutane is also known as isotretinoin, 13-cis-retinoic acid, and 13-cis-RA. It is related to vitamin A and is given by mouth. Accutane has minimal toxicities when used as a therapy for children with neuroblastoma. The most commonly described side effects include dry skin and mucous membranes. Some children experience peeling of their palms and soles.
Accutane stops the growth of neuroblastoma and can induce differentiation in vitro (in a test tube). A 5 year, randomized CCG study (CCG-3891) included 539 children with high-risk neuroblastoma. The study concluded that accutane improved the event-free survival for children with the disease and recommended that it should be used for treating all neuroblastoma in the future.).
(What can you tell me about accutane?
Accutane is also known as isotretinoin, 13-cis-retinoic acid, and 13-cis-RA. It is related to vitamin A and is given by mouth. Accutane has minimal toxicities when used as a therapy for children with neuroblastoma. The most commonly described side effects include dry skin and mucous membranes. Some children experience peeling of their palms and soles.
Accutane stops the growth of neuroblastoma and can induce differentiation in vitro (in a test tube). A 5 year, randomized CCG study (CCG-3891) included 539 children with high-risk neuroblastoma. The study concluded that accutane improved the event-free survival for children with the disease and recommended that it should be used for treating all neuroblastoma in the future.).
Imogen will be taking this for six months from next Tuesday.
Clinic today was very quick, and we are planning to go in regularly in the afternoon it’s a lot quieter : ). Well here’s to another cruisie week, as its ALMOST Christmas as Immie keeps saying. I had an aha moment the morning when I looked at Immie engaged and smiling while stamping pictures on the Christmas envelopes. I thought how joyful it is to live in the moment, there really is no reason to worry for tomorrow as it has not arrived yet. I think I may have to take a leaf out of my beautiful girls book and enjoy the moment and not anticipate the future happenings.
Love The Holmes Gang
2 comments:
Sweet. Have an awesome Christmas Holmes'
We love those smiles and wiggly fingers!!!
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