Friday, June 19, 2009

Don't sweat the small stuff : )

First Time Immie has wanted to wear clips since her hair came back..it was very cute : )

Ok I did start writing this blog update, a couple days ago, and then read it back and realized it was all a bit sooky lala. Yes we had an average week at the resort, but I started thinking that maybe it was more important to look at the positives of this week. Like the fact Imogen has been in fine form..I regular comedian..she has had us in fits of laughter, that at times it was just so hard to put her to bed. Kody and Imogen both have wicked personalities, at times Kody’s humour is amazing and very funny even to the oldest of grownups. So yes we are LUCKY (lol) and the phase “Don’t sweat the small stuff” does ring true especially in accordance to this week.

Ok so Immie did not get all scans this week, a defunk at the nuclear plant or maybe just offices, meant Immies nuclear scans did not happen. Next Tuesday and Wednesday are take two, meaning results clinic is the next Wednesday. Then no one could decide whether to immunise the princess, though I think (?) it was decided no. Then no one reminded us to give Imogen iodine, hydration or contrast for the CAT scan...but hey it could have been worse.

We did have awesome runs into the hospital on each day..got parking, only had to spend the mornings there, got another two new dolls for Immie (oh yes she is so slacking in the baby doll dept – not), saw “ Gorgeous” Olive and Simon briefly (other patients), saw Dr Rahmon, got some more stickers, got 4 appts done, got to sponsor the hospital cafe, got the dvd of the 3b modelling show, got to see Carol, Hailey, Suzanne, Dora aka Shirley, Nurse Rochelle, Nurse Paina, Hillary and lots of the other lovely staff, heard Immie say after she saw Dr Maryanne “ We haven’t seen her for ages” (oh that’s so mini me) and most importantly got to spend time with my beautiful and very brave girl.

I would say the positives out rule the negatives, remember...

Yesterday’s the past,
Tomorrow’s the future,
But Today is a gift,
They why it’s called a present.

Love ya
Fiona and the gang

Sunday, June 14, 2009

For Your Beeswax it's....


End of Treatment Scan week
...starting tomorrow.
A very busy and tiring week for the Im-gen.

Monday begins at 8am - cannula (drip) inserted for the GFR (kidney function test), which takes about 4 hours (I think - pregnancy brain : ) and then at 11am a Bone scan.

Tuesday begins at 10 am with another cannula (drip) for the 11.10 am 5 min MIBG injection and then 2.30 pm Echo (heart test). My mum's day, as i only remembered last week I can't go due to the nuclear medicine and our baby bean.

Wednesday begins at 9am CAT scan then 10.45am for MIBG scan (yeap the one I was worried about before as she has to lay still for an hour and half).

Immie is not having a audiology...ummm..no brainer due to her hearing aids ; ) and no bone marrow aspirates as they believe it to be unnecessary due to the fact her bone marrow has never played a huge part in her disease.

We enjoyed a beautiful day today at one of Imogen's most favourite place in the world...the Cuddley Animal Farm in Henley Brook, perfect peace and relaxing, or you could say the calm before the storm.

Send us some thoughts and positive vibes if you have some laying around..if not don't stress as everything is going to be peachy keen (lol) aka fantastic : )

Love to all

The Holmes Gang
P.S. Results appt is next Wednesday at 11am.

Wednesday, June 03, 2009

831 Days Later...


Dearest Imogen

I cried for you today,
But they were not tears of sadness.

I cried as I was grateful,
For you sitting there smiling at me.

For today erased all the times,
I doubted that we were wrong to
Cause you all that pain.

Every test, scan, needle and dressing change,
And never once you complained

You smiled, laughed and crafted
Through all those difficult times.

Our incredible inspiriation,
Always our light on the darkest day,
Forever we will be proud,

Never will we forget,
You choose us to help you fight,

Never will we forget,
The friends we made and lost along the way,

Forever our baby girl
T
hankyou Imogen for choosing us

Love Mum, Dad and Kody
3rd of June 2009 - Last Day of Tablets FOREVER
831 days since our lifes were changes forever

P.S. Check the link above for some funny pics of Kody for his assembley