Wednesday, March 18, 2009

Truely wonderful music to our ears : )


Hi all

Well you can tell the news is absolutely fantastic as I am updating so quickly. Today we had results and check up clinic. The results amazingly confirmed from the MIBG “Mr Big” scan, there is no evidence of disease and most importantly no evidence of new disease. Yay, Yay, Yay, to a cancer parent this news is music to our ears, the relief that our beautiful girl has dodged another bullet. Kicking cancer's butt big time!!!. We are so proud. Now she continues on doing Accutane for another 3 cycles, two weeks on, two weeks off. We are going to finish this protocol off completely this time, no maybes.

Though it’s not just our Immie who has made us proud, our incredible boy Kody has been hard at practise to perform the Hauka at the school’s harmony day. Yeap our very white skinned boy, with no shirt on in front of the school, performed the Hauka with an assortment of New Zealand and other boys yesterday. It is one of those moments as a parent you are in total awe of your child and what the 10 years of parenting has developed into.

We are so blessed. Thank you to our guardian angels, Thank you to the spirit angels especially Blake, James and Savannah for looking after our girl and Thank you to you our supporter, our friend, our family.

Love to you all

The Holmes Gang
Kiwi boy

P.S. I had my first antenatal appt at Ossie Park Hospital today, all was well. Even scored a referral to the dietician apparently with my BMI being on the high size, and because I am so FAT, I need to keep my weight in order (LOL).


P.S. Please send love and support to two beautiful families, Oliver and his gorgeous parents Karli and Simon who are back at the resort getting a new port (3rd one) as it has dislodged. Also to gorgeous Josh, and family Hannah, Peter and Anika who are having a challenging journey at the Resort.

Saturday, March 14, 2009

March the crazy month!!!





Hi to all our avid supporters,

This update is for you (especially you Karen and Margaret - My mum's friend : ). I must confess Jas and I have been having a hard time this month working through our apparently normal life that constant throws us off balance.

Immies 2 year battle with the beast was celebrated as our grateful day for having her here with us. We all went to the pool including Granma. Sunday’s mornings at the pool have become our tradition, it’s so nice to drop out of life for 2 hours every Sunday – no mobile phones, just laughing and lots of fun. Immie now swims like the fish she was 2 years ago. She has perfected duck diving and pulling arms. Kody always eggs us into going to swim in the much cooler pools outside...but bombies are fun, especially in the diving or is that “belly flop” pool : P.

So another year was crossed off the countdown to the day we can finally breathe again. It’s funny a lot of people no longer ask how Immie is going, I think sometimes that maybe EVERYONE is totally over it. Personally I don’t blame them, but unfortunately we don’t have that option. I am sounding like such a sad sack, but I just can’t help it, call it the baby hormones though I prefer to just call it “I HAVE HAD ENOUGH!!!”. Ok enough venting, let’s focus on what has actually been happening.

Since we updated with our gorgeous news, life has been crazy busy!!!. We had two cancelled MIBG scans due to the nuclear medicine sent from Canberra, not arriving correctly. This lead to Immie being constantly filled with iodine, the medicine that helps protect her thyroid during the scan. Granma (superwomen) took Immie to have her nuclear injection on the Tuesday, 10th of March an appt booked for 11am that actually occurred at 2.30pm (argh!!). Immie finally had her big scan the MIBG scan on Wednesday 11th of March. The MIBG scan runs for an hour and half and requires Immie to lie as still as a statue for the complete time. This was Immies first time without a GA, she was an absolute star. She was allowed to have a little relief (1 -2 mins) between sections as the assistants moved the machine. We are very happy that it is now done, and we have an appt next week on Wednesday to receive results.

Imogen has also completed another round in the ring with Accutane, this time her poor face took a battering, by the end her skin had broken down and was red raw. Though do you think that bothered Immie – nah!!!. Would you believe we start again next Wednesday, geez it’s frustrating that the two weeks go so fast when Immie is off the drug.

What else...Jason and I celebrated 6 years of marriage, it’s been an amazing 6 years, here’s to many, many more incredible year’s together. We were lucky enough to go out to dinner to celebrate thanks to our friends Dana and Jason xx.

We attended our beautiful friend Nicole’s 5th birthday on the weekend, a Dora and Diego theme, lots of fun for all. Well Done Cath!!!.

Jason volunteered (lol) to go on a scout walk, with Kody and his scout friends...such commitment. Good to see Jason and Kody doing their best!!!.

I’m back at uni doing three units, it is a lot of work, and until our Friend Kellie came to give a hand on Sunday I was a little worried about where I was going with it all. Now I am on a clear road to successful lesson plans and essays. Positive, positive!!!

What’s to come in the next couple of weeks...This weekend we have a surprise party, and then my Dad’s birthday and baby Cooper’s 1st birthday on Sunday. Next week I have my first initial appt at the hospital clinic, we also get to say hello to the new Holmes addition with an ultrasound on Friday. Kody has scout camp next weekend; this is the beginning of Kody’s camp career. He has two other camps in April. Both Immie and Kody have school excursions in the next couple weeks. Immie also has an appt with the hearing school, so we can get the most out of her hearing aids. My calendar is struggling to hold all of these happenings!!!.

Well this is Fiona signing off, hoping next time I visit I am not such a sook : ).

Thanks for the love and congrats all send regarding our beautiful news.


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